Support

We understand that caring for a child with Angelman Syndrome can be difficult, and we are committed to providing emotional, practical, and financial support to families who need it.

Inform

We believe that knowledge is power, and we strive to provide families and the wider community with accurate and up-to-date information about Angelman Syndrome to help them make informed decisions.

Educate

We are passionate about educating families and healthcare professionals about Angelman Syndrome to ensure that everyone involved in a child’s care is equipped with the knowledge and skills they need.

Network

We know that having a supportive community can make all the difference for families with a child with Angelman Syndrome, and we are dedicated to connecting families with others who share similar experiences.

Advocate

We are committed to advocating for the needs of families with a child with Angelman Syndrome, and we work tirelessly to raise awareness and promote change that will improve the lives of those affected by the condition.

Our Mission

Our mission is to support, inform, educate, network, and advocate for families with a child with Angelman Syndrome.

Welcome to Angelman Syndrome Association of WA

In November 2007, this Association was founded in Perth to support the families of children and adults with Angelman Syndrome and to raise awareness of this rare genetic condition which affects 1 in about 20,000 births.

ASA of WA’s mission is to support, inform, educate, network, promote research and advocate for people with Angelman Syndrome and their families. We foster mentoring and peer support among our families, as the syndrome presents a number of challenges both for people with Angelman Syndrome and also their caregivers.

We are committed to:

establish support systems for people with Angelman Syndrome, their families and other associated people.
source, provide and support advocacy on behalf of people with Angelman Syndrome, their families and other associated people.
gather and disseminate information about Angelman Syndrome and related matters for the benefit of families of people with Angelman Syndrome and other interested organisations and individuals.
educate the families of people with Angelman Syndrome, the medical and educational communities, interested organisations and individuals, and the general public about the diagnosis, treatment and management of Angelman Syndrome.
schedule, co-ordinate and encourage social functions to engender the networking of families and promote communication, information and knowledge transfer within the Angelman Syndrome community.
foster research activities on the diagnosis, treatment and management of Angelman Syndrome including the study of genetic imprinting, hypopigmentation, appropriate drug therapy, hyperactivity, sleep disorders, epilepsy, family stress, behavioural support, coping mechanisms and communication training and options for non-verbal people and those with complex communication needs.
raise funds for the promotion and attainment of the above objectives.

We strive to increase awareness of this rare disorder among the general community, and amongst medical and health professionals to help diagnose and support the many misdiagnosed or not yet diagnosed with Angelman Syndrome.

Make A Donation

Angelman Syndrome Association of WA is an Australian Health Promotion Charity with DGR status, holding a WA Charitable Collections Licence as an Incorporated Association. This implies that donations are tax-deductible.